Friday, May 30, 2008

May 30

Colin is feeling better but he's still not at 100%. His congestion has moved down from his head into his chest and he just sounds awful. The doctor gave us more medicine to take which should hopefully help. If he's not better by Monday, we'll be heading back to the doctor. The good thing is that aside from a runny nose that's driving him crazy, it's not slowing him down. : )

We also had our orthopedic specialist appointment this morning. The diagnosis is as expected - Colin has Nail Patella Syndrome (NPS). But the good news is that he doesn't have many of the typical characteristics and the x-rays showed that all of his bones are in the normal range. The characteristics he does have are all minor which will likely correct as he grows or are cosmetic (like cracked thumb nails). The doctor said that he does have tight hip flexor muscles which is probably why he walks with his back arched as he's compensating for the tightness. So, she recommended a few sessions with a physical therapist to teach us some stretching techniques that will help with that and we should notice improvement in just a couple of months. Other than that, we'll just monitor him annually as he develops to make sure we're on top of anything that might come up. I've been reading a ton about this - so if anyone wants more information on NPS, just let me know and I can send you all sorts of stuff. It's an interesting condition and I'm learning more about myself in this process. Now I know why I have such thin hair - NPS!

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